Parkinson’s
disease (PD) is a progressive disorder. Those who are diagnosed with
Parkinson’s disease have the advantage of medicines that can only help with
management of symptoms as it is not yet a curable disease. Researching of PD is
a continuing one resulting in newer treatments as scientists discover and learn
more about PD, a complicated disease.
Caring by the
family members is required in all diseases. But, PD is such a serious disease
that requires a high degree of care by the family members of the PD
patient. It not only affects the entire
family but also the extended community of friends and relatives. The family
members or caring partner are familiar with the challenges associated with
living with the disease. Their responsibilities include helping the patients
with his/her daily routine, managing medications and making financial
decisions.
The following is the advice for the care partner as
part of training to cope with the PD.
It is equally
important for taking care of yourself if you happen to be a care partner. It is
as if you are dealing with the disease except for the biological pain the PD
patient is suffering from. Taking care of oneself as a care partner can benefit
the care partner as well as the PD patient. The benefits are revitalized energy
and renewed interest in creative activities.
First, the
caring partner should stay connected to a nearby support group whom the caring
partner can ask questions, share experiences and advice. Neighbours can be
immense help if only you let them know your problems. As you are in a
care-giving role, it is important that you equally take of yourself.
As a caregiver
in the status of a family member or otherwise, your state of mind and overall
health must be taken care of as the PD patient is more dependent on you. There can be moments of pride as well as
frustrations depending on the response from the PD patient who may react as if
you do not sufficiently take care of him/her. Hence, as a caregiver, you should
train yourself emotionally not to be swayed by the emotions displayed by the PD
patient.
Care giving is
24/7 job but at the same time, you have to cope with your
own interests and activities. You must keep a record of the patient’s
medications, doctor visits and symptoms from time to time. This will help you to apprise the doctor when
he visits next. Be aware of limitations on medical reimbursements by the
insurance and plan your budget accordingly.
